Under the ideology that medical data in any form is the property of the patient and not an institution or government. I get it it’s a catch-22 situation. Without data there are no meaningful statistics. But are those who data is used to arrive at diagnostics and cures provided any benefit? I don’t think so - change that and you may see an uptick in data sharing.
Yes, because throwing away patient privacy in the name of hopefully maybe someday being able to get better treatment is not a trade-off that we are willing to make.
That's a completely acceptable trade off to me. China and the west have different perspectives on how users privacy should be handled.